anyhoo, so i've found another helpful website...
it's really a website that, as its name suggest, you can go and find other "patients like u" and read their stories and bounce around ideas and such. that's where i found most of my information on the alternate drug, 4-AP that my doctor was tellin me about. It's somewhat confusing to me because it appears that it's the the base drug of Ampyra and has been around for some time now...in its (raw?) form tho, it hasn't been approved by the FDA.
Nothing is ever simple...esp. when dealing with MS.
I was talking to a co-worker earlier and she told me about someone she knew who also has it, but before she was finally diagnosed, her doctors thought that she kept suffering from food poisoning! WTF??? food poisoning??? Does the disease really present itself in that way too???? We didn't spend a whole lot of time on that, so i'm not sure what else the chick may have been going thru, but geez louise! no wonder there's no cure!!! Everyone's TOTALLY confused!!!!
WoW! I had no idea about the variety of symptoms!! That must make it really tough to feel any sort of control. What a great website though!
ReplyDelete