i talked about whether it's better to be blissfully ignorant in my last post. i am convinced that that's the way to be - too much knowledge is a helluva ting; i've always felt this way.
i was reading another blog this morning and ran across something called the "tysabri rebound effect" - never heard of it before. let me just say that apparently there is no scientific research/hard and fast facts backing this up but still it's "out there"...
so essentially, some patients who came off tysabri reportedly experienced a HUGE relapse and shown increased lesions on their MRIs about 3-6 months after. great! is that something for which i may need to brace myself??? steups!!! doesn't make sense getting my panties in a bunch for something that i don't know for sure will happen but u catch my drift about being blissfully ignorant don't u?
i was reading another blog this morning and ran across something called the "tysabri rebound effect" - never heard of it before. let me just say that apparently there is no scientific research/hard and fast facts backing this up but still it's "out there"...
so essentially, some patients who came off tysabri reportedly experienced a HUGE relapse and shown increased lesions on their MRIs about 3-6 months after. great! is that something for which i may need to brace myself??? steups!!! doesn't make sense getting my panties in a bunch for something that i don't know for sure will happen but u catch my drift about being blissfully ignorant don't u?
Sometimes I wish I was blissfully ignorant. I am one of those people that researches everything. I have never taken an MS DMD, as a result of that research. Don't know if I am better off or not really. The MS hasn't gotten worse, but it hasn't gotten better either.
ReplyDeletewow! what made you decide not to take any? just everything you found out there about the drugs? i'm not brave enough to do that (not be on the drugs)...on top of which i'm not disciplined enuf to change my diet or make other adjustments for not being on the drugs. do you do anything specific to manage the MS?
DeleteYep, I'm sort of in the blissfully ignorant camp, too. Before I was diagnosed my neuro said to NOT research my symptoms online, as what I learned might be completely wrong and would likely freak me out. Of course, some things *should* be investigated, but relying on chat rooms, message boards, or other non-official sources can lead to a lot of freak-outs over misinformation.
ReplyDeleteoh yeah...after my first MRI as i was waiting for the results, my sister and i had diagnosed me with Bells Palsy. it's crazy/amazing/scary/interesting/helpful/unhelpful what you can find online.
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