May 24 2011

Today is World MS Day

Join the Global Movement...what does MS = to you?

MS=Lifestyle Adjustments (many lifestyle adjustments...)

1 Step Closer?

More news about research, treatment etc:

FDA Agrees to Fast Track Status for Drug Being Tested for MS

It's yet another disease modifying drug to slow down progression - still no cure, but research has moved in leaps and bounds since i was first diagnosed.  There were only 4 drugs available to me at the time, soon patients will be able to look at scorn on specific drugs because there will be so many on the market.

In other news...now, i'm anaemic!  not sure when that happened or why!  Oye!!!  the good news is that i went to give blood the other day (my all time favorite thing to do) and they gave me my walking papers and refused my blood.

WOOHOO!!  boy was i happy...being stuck with that needle is NOT my idea of fun.  It's [ ] <--- that wide; i swear! 

there's always a silver lining somewhere... :-)

Awareness

What is it about when u know about somehing u hear more and more about it?  For instance, you decide to buy a G35 and all of a sudden those are the only cars on the road (btw...i really think Stax4 is going to be a G35 coupe, but that's a story for another day).  I was diagnosed in 2005 - none of my friends knew about MS, none of my family (cept maybe the doctors and nurses amongst us) knew about it.  i was the pioneer - wanted to be first and foremost - kinda like when i got my ticket...I was in front winning the race!

Now, every 2 minutes i look around, either someone else i know is being diagnosed or someone i know knows someone else.  It's become the "in" thing.  It's just kinda amazing to me how many people i've heard of who have Multiple Sclerosis.  I guess in the grand scheme of things the doctors are getting smarter afterall and a diagnosis is no longer taking years and years to make.

Makes you wonder...since so much progress has been made with diagnoses, maybe there might actually be hope for their figuring out the root cause and a cure might not be too far behind.  Go figure!

MS Awareness Week is Over

this is the first time since being diagnosed that i was even aware of an "MS Awareness Week" and i'm glad that i was able to participate this year.  The "party" at the MS Society of GA was nice...good times, with good people.  Thanks to all of you (u know who u are) for your support - either wearing orange for the week or coming to the party...

Enjoy a few pictures...

Orange!!!

I hope u ALL have ur orange gear for next week!!

MS Awareness Week, March 8-14....

wear orange - that's our colour! :-)