tag:blogger.com,1999:blog-60415796279975075022024-03-05T12:11:56.325-05:00Multiple Sclerosis & MeMS: Multiple Sclerosis, My Story...<br>
I am a Trinidadian; I will use lots of Trini slang/words and will link to MY TT Dictionary as necessary but lime = hang out; i will use that a helluva lot!Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.comBlogger425125tag:blogger.com,1999:blog-6041579627997507502.post-32408071703402256132017-03-22T18:43:00.000-04:002017-03-22T18:43:25.610-04:00New Site
I've moved...check me out at www.msxats.com
new look
new feel
same ole lime...
Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-87162403816456839052016-10-06T10:14:00.003-04:002016-10-06T10:14:46.981-04:00Lemtrada - Next Rounds
this is going to be a short post.
Just wanted to let allyuh know that Lemtrada Round 2 is next week Wednesday. I got lucky. when I found out that it was going to be in October, I made sure that it could be scheduled after Columbus Day so I wouldn't miss Miami carnival again because of it. turns out that was a non-issue though cuz I'm not even going. Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-49264224329195615462016-09-29T09:31:00.000-04:002016-09-29T09:49:03.831-04:00The Story
In my last post, I mentioned that I had a story about me and the scooter in the airport.
So a few years ago, I went to Houston for a weekend. Every time I travel, I go to my gate and get a gate tag to attach to SS (it's pretty much a baggage claim ticket if u will - one piece (with a number) goes on the scooter and I have another (with the same number)). I roll down to the door of the Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com1tag:blogger.com,1999:blog-6041579627997507502.post-35734826849193816712016-09-22T08:50:00.000-04:002016-09-22T13:57:49.517-04:00MS Wellnes Expo and...
A few Saturdays ago I went to a wellness expo hosted by the MS society. Was a good use of my time - heard some things I already knew and learned some new things too. There was a neuropsychologist there from Shepherd Center who gave a familiar story about his first MS patient.
The guy had a huge yard and he always used to go out on his riding lawnmower and cut his lawn every Saturday morning Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-85240077784652776962016-09-12T08:48:00.000-04:002016-09-12T08:49:31.235-04:00Damn u MS...or Stacey (maybe)
I'm not a stubborn person usually but when it comes to the conflict between me and the MS with respect to the sun and heat I am stubborn to a fault - ALWAYS. Last week Monday morning I went to a rooftop breakfast fete - this fete tho is not ur typical breakfast fete in that it starts at 8am. There's a covered area and a section that's open. Do I try to lime/stay in the covered area? Never. In Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com1tag:blogger.com,1999:blog-6041579627997507502.post-9978179201554581112016-09-01T09:07:00.000-04:002016-09-01T09:07:30.644-04:004 to 1
So when I moved into these apartments, I lived on the 4th floor. It was okay because I also parked on 4 so was a lil walk to my apartment. I had an exit plan in the event of an emergency (u know - having to get from 4 to 1 if the elevators were out) although really and truly it had flaws but luckily I never had to test it out. Last year when the lease was up I moved down to the Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-70234021375883824942016-08-18T12:07:00.002-04:002016-08-18T12:07:59.825-04:00My Vibrating Machine
Settle down...This is a PG blog ;-)
My OT made me use this first. It's a machine that (u guessed it) vibrates that helps patients with spasticity. My left side is spastic - it's the reason that my left hand curls up and the leg gets so stiff. The word that the therapists use to describe spasticity is "tone". So the vibration machine is used to break up the tone in my body.
Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com5tag:blogger.com,1999:blog-6041579627997507502.post-23647691475671775602016-08-11T14:36:00.001-04:002016-08-11T14:36:29.859-04:00Physical Therapy
I've had some physical therapists over the years. I went to 2 or 3 facilities and ended up stopping each one for one reason or other. Some years ago, I discovered "home health care". Up until then I had no idea that even existed - I guess it's not until u really need something and start poking around that u really realize what's "out there" - and for whatever reason, I decided to do in home PT.
Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-60882580194566716882016-08-04T10:03:00.000-04:002016-08-04T11:32:50.680-04:00My Bionic Foot
I'd seen the ads for this product before but never dug into the benefits of it. As my walking took a turn for the worse, I started looking into it and eventually i had the opportunity to get a free evaluation, so why not go check it out. During the evaluation, I could actually feel the difference the thing made. Essentially it's a cuff (with two electrodes) that goes around my left calf Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com6tag:blogger.com,1999:blog-6041579627997507502.post-10278560289824211282016-07-28T09:47:00.000-04:002016-07-28T09:47:29.680-04:00Never Say Never
They say "never say never". Well now, I guess I must agree.
I've said multiple times - including right here on this blog - that I'll never go home again for Carnival. I mean:
I cyah play mas (my biggest reason)
I shouldn't be in heat/sun - steups
(being on the scooter) Is never a good thing for me to be in crowds
I love my country but let's be honest, a lot of places are not so Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com2tag:blogger.com,1999:blog-6041579627997507502.post-59449980977608752452016-07-21T09:53:00.002-04:002016-07-27T13:25:27.033-04:00Why Lyft
I planned on going more into my use of Lyft and then I heard a story on the news the other day that tied in very well...lemme explain.
So here in the US, there are ride-sharing options to use when u need to go somewhere. Essentially anyone who owns a car can sign up to be a driver with whichever company and thru the company app, when I'm ready to go somewhere, I input my destination and Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-43773592797441160152016-07-14T08:57:00.000-04:002016-07-14T15:47:02.975-04:00Lemtrada - The Drug
It's prolly the strongest drug out there...it's also the most expensive one I've taken. When I opened the "cost" statement, I swear I almost fell off Soca Scooter - the length of time for approval suddenly made sense. The simplest way to explain how it works is to say it depletes the Tcells in the immune system. The thought is that when the immune system regenerates, it'll be with "good" cells Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-14667789585603845762016-07-07T14:55:00.001-04:002016-07-07T15:01:43.237-04:00The Lemtrada Process
Last week was a rough week work wise...gihmeh ah bligh for not posting.
Since my diagnosis 11 years ago, I've actually been on 5 disease modifying drugs and there was always one reason or other for changing. Last year in February my doctor suggested that I'd be a good candidate for a new one that actually had years of trials backing it. We discussed it; I said sure. I'll post next about how Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-31818860708129294592016-06-23T10:03:00.000-04:002016-06-23T10:14:27.999-04:00Stax 4 Part Deux
Before I start writing this post, I hadda say that I'm not writing in any order here. I'm just talking about the past year and if I have anything current to include, well that'll happen too.
The dream of Stax 4 being an Infiniti coupe remains and will always be just that...a dream.
Had a real nice picture to insert are but either my dinosaur of a laptop, blogger or both of them Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com2tag:blogger.com,1999:blog-6041579627997507502.post-48971980338620786392016-06-16T11:21:00.002-04:002016-06-16T11:27:53.655-04:00Hi
It's been a little over a year. I stopped writing because my disability was getting worse and I no longer enjoyed(?)/looked forward to(?)/wanted(?) to write about things going in a downward spiral. I think I'm at a point where I'm dealing with the worsened state and I'm okay with it (at the end of the day, I have no choice right?) and I actually want to come back - been thinking about it Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com11tag:blogger.com,1999:blog-6041579627997507502.post-55157029703319037432014-12-11T14:37:00.002-05:002014-12-11T14:45:38.271-05:00This is It
Fellas,
We've come to the end of this road. These last 6 years have been great (didn't think that I'd even last that long) but I can no longer write about being sick - it's no longer cathartic for me nor is it something I can do any more. I know I left yuh hanging for the past few months and a few things have happened that I can share but...gimme ah bligh. Know that on the MS front, i Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-27148227823956486052014-09-22T10:23:00.000-04:002014-09-22T10:23:32.959-04:00Secondary Progressive Multiple Sclerosis
Well...
I wish I could tell u that it was simply the lack of exercise in trute OR like last year, was jes ah infection that needed to be cleared up and I moved on. No. Nothing so simple...not at all. I've officially crossed over the line from relapsing remitting MS to secondary progressive MS. the way I've been describing to everyone I've spoken to is "(for me) think about it like a stage 1, Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com9tag:blogger.com,1999:blog-6041579627997507502.post-55338705791101201672014-08-12T10:30:00.001-04:002014-08-12T16:39:42.673-04:00Ah Shit...
AC cancelled gym last week Tuesday. When I found out, I smiled cuz Monday night (after limn on a school nite - those days of bouncing back fresh and chipper are long gone), I'd actually been thinking of canceling myself but didn't. Dr. G was in town whole week and even tho reliving our glory days is out, I canceled PT and we limed again Wednesday. Thursday morning, I turned at the Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com2tag:blogger.com,1999:blog-6041579627997507502.post-51539543683548441912014-08-04T10:37:00.001-04:002014-08-04T20:53:33.387-04:00My Disability
I always just measured my disability by my struggles with walking; I never really thought of my hand as a contributor. It only dawned on me the other day (when I wrote this) that "wait a minute, the fact that I can't use my hand as I want to is a disability too". I swear I never thought about it before - call me stupid, but it is what it is - go figure! We do this thing at home - If u ask Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-22895822103280346792014-07-30T09:52:00.002-04:002014-07-30T10:09:49.043-04:00Having Multiple Sclerosis
Where the heck did I go and pick up this disease? Why me? Dunno that I'll ever get that question answered but with some luck maybe i will in my lifetime. Anyhoo having MS makes me feel:
Loved - don't get me wrong. I knew I was loved before but the things people (my family, the inner, outer & outer outer circles) are willing to do for me at a moment's notice if necessaryAnonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-53883475164420929372014-07-24T09:21:00.001-04:002014-07-24T09:21:52.864-04:00The Porcelain Goddess
I know that u jes read this title and now you're wondering, "huh? Where is she going with this?"
I have an imaginary process map (diagram that details all the steps in a process used to identify gaps in the process) in my head for just about everything I do regularly. If things don't happen in a certain way, I could get anxious, lose my balance or worse yet (u know it) fall. One time Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com1tag:blogger.com,1999:blog-6041579627997507502.post-69644958466419535772014-07-17T08:58:00.001-04:002014-07-17T12:38:47.311-04:00Side Effect?
World Cup started June 12th so the 14th I sat and watched 4 football matches and what did I do on June 15? Sit and watch 3 football matches - oh and ate lunch and dinner in between. So there was no way that I could NOT notice that I'd been feeling fluttering in my chest the whole weekend. What the?!?! As with anything MS related, I started monitoring it.
Let me take you back a few yearsAnonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com2tag:blogger.com,1999:blog-6041579627997507502.post-62587934408983401252014-07-15T09:11:00.001-04:002014-07-15T09:11:48.838-04:00Follow Up Visits
Soon after Atlanta carnival came and went, I went to the MSCA for my "3 month" check up. I swear I can give anyone of you a neurological exam (and I won't even charge as much as the doctors do).
Follow my pen with ur eyes only, don't move your head
Squeeze my fingers
(While seated) Push up ur thighs while I push down
Push out ur knees while I push in etc. etc.
Anyhoo, I did good. I Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0tag:blogger.com,1999:blog-6041579627997507502.post-66833288950960798222014-07-10T09:58:00.002-04:002014-07-10T13:59:51.787-04:00Well...
It certainly wasn't my plan to stay away this long...smh! I have so many things to tell u, but I'll start with Atlanta carnival and "fete of the year" since that's where I left off. So cooler fete has lost its "fete of the year" title...that honour now goes to "Sunday Morning". It's the (you guessed it) Sunday of memorial weekend and starts at 8am. Wow! BESS FETE!!! It was in an open park-like Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com2tag:blogger.com,1999:blog-6041579627997507502.post-31333077612955786882014-05-09T10:51:00.001-04:002014-05-09T10:51:23.468-04:00It's (almost) That Time Again
Fete of the year!!
Cooler fete is 5/17. Is in the same place as last year so does that mean Dekalb County's Finest Morons/Assholes will leave us alone? They didn't shut it down last year so there's hope. This year should be better than ever - it's the 10 year anniversary so there's a top DJ (imported straight from Trinidad) AND a BOSS artiste. I plan to go get my Anonymoushttp://www.blogger.com/profile/01050970928405965804noreply@blogger.com0