Monday, August 15

MS Really is Bad

One of the things that helped me come to terms with having MS was that "it's not the worst thing that could have happened"...I'm beginning to rethink that...MS is pretty darn bad...okay, maybe it isn't the worst, but it's up there with the rest of the bad things.  i think that what makes it worse than some other diseases is that the cause is unknown, it's unknown how it could affect anyone on any given day, the cure is unknown- there are just too many bloody unknowns.

One of the ways that it can affect us is with bladder control.  Some patients may not be able to control their bladders whilst others may not even be able to empty their bladders (no consistency either!!!!) for me, sometimes I pee just because there is a bathroom around - not necessarily because i have to pee, but because there is a bathroom i don't mind using available.  I never let it get to the point where my bladder is about to buss because if i get to that point, my ass is grass - there's no holding it for me!

I noticed that every now and again something would happen to me so i said to G, "you ever had to pee, used the bathroom and then u notice after you're done and u leave the bathroom (mind u) that, "shit!  i have to go again?"  Of course she said no and as usual, we moved on...i chalked it up to one of those things that just happens sometimes i guess.  I subscribe to the MS Society's monthly publication and 1 day i was reading it and i saw an article on the bladder control issue and it spoke about patients' not being able to empty their bladders and it hit me, "what the?!?!?! i guess that's what i've been experiencing"  i'd never thought that it was the MS - for once i didn't blame it and it actually is to blame.  When it happens, it's only at nite - i drink so much water (i always say, the only things i drink are water and alcohol, i don't mess with juice and sweet drink and all the other shit out there) that sometimes i have to get up 2 or 3 times to pee at nite - well when i do use the bathroom and get back into bed to go back to sleep, that's when it give me a nudge and says, "eh eh...we not done yet" so i have to get back out of the bed and head back to the bathroom.

I've had conversations with the MS, "i mean, do u really think that it's necessary to put me thru this????  i mean i have to get out the bed, stumble to the bathroom, pee, stumble back to bed, lie down to start going back to sleep and THEN u decide to let me know that "oh by theway, u're not done yet" so i have to start the whole bloody process al over AGAIN!!!"  i mean...really?!??!?!  UNNECESSARY walking is not something i ever look forward to; i try to save my walking for when i absolutely must do it and in my book, this situation counts as completely unnecessary and uncalled for.

Don't get me wrong, i still know that my situation is not the worst (for sure) and maybe MS isn't the worst, but it sure is damn bad!!



  1. You're so funny! When I read this at work I literally laugh out loud so I have to wait until I get home. Hope you have a restful night with few-er interruptions!

  2. You are so cute. Yes it sounds like you have quite a bit of residual pee sitting in your bladder even after you tinkle. I'll just let you know the same exact thing happened to me and to make a long story short now I catherize myself, which doesn't mean you are headed in that direction! But what as you might guess you may at least think about seeing a urologist. But I'm no doctor my dear.LOL

  3. Okay, I know this is not funny...but I laughed...because I have the same pee problems at night, and in the day too! And laughing is much better than crying.

  4. Well...take comfort in knowing this is also a symptom of baby-making...i already pissed myself for the morning after a sneeze (TMI) and I ALWAYS have the 5 minute after residual pee!!!!!

  5. Iv started to sleep in my bath to help cut down my laundry work,my girlfriend even dumped me cos she got sick of me peeing up her back,its a horrible frustrating disease that really does take the piss at times :s