Showing posts with label waiting game. Show all posts
Showing posts with label waiting game. Show all posts

Tuesday, May 11

Waiting Game

this last waiting game I've been playing is over!  I was contacted by the MS Center yesterday and have scheduled my 1st Tysabri infusion on 6/4.  The most surprising news?  The insurance company claims that they will pay 100%...when I exclaimed in bewilderment, the chick said, "yes that's what they said, but u can call me before u schedule the 2nd one to confirm that they paid in full for the 1st one if u'd like."  WOW!  who woulda thunk it...not me!

So...before starting the infusions, i have to be off of the daily shot for 2 weeks...since this process started, i have been slacking off taking the shots - i cyah lie.  So, I missed last week Thursday and Friday (the legs are the sites i hate the most), took it Saturday and completely forgot Sunday.  Yesterday morning, for whatever reason, I decided to do the right thing and take it.  F*CKIN A!!!  because of that, I couldn't go in on 5/21.  (Since this is new and I'm not sure how I'll react (side effects and all!), I want to go in on a Friday for the 1st few times.) 5/28 is out - won't be in town...so I have to wait all the way till June!  That leaves me a whole week to continue with the bloody daily shot - F*CKIN A!!!!

On aother news...the Ampyra continues to work; still no side effects and walking almost like a champ! :-)