Tuesday, December 17

Day of Reckoning

I go to Dr. Gilbert today. Times like this, I wish I were a kid again - my parents would have to make the decision for me. Steups...being an adult is overrated.
  • Do I tempt fate and go back on Tysabri?
  • Do I try 1 if the other oral drugs available?
Additionally, going back on Tysabri means that I'll hadda come up with at least $3,000 for out of pocket costs. GRRRRR!!!  I really am torn tho. I eh go lie. 

Go back to Tysabri 

  •  i know what to expect or do I? Just because I had a good experience before, does it mean I'll have another good one? 
  • More money
  • Proven to improve disability in most patients 
  • Shots - having to find my non existent veins
  • buh AA…how i forget this before???  (updating with this after i published) high risk of contracting the fatal brain infection that does appear and u may not even know
New Drug

  • Have ABSOLUTELY NO IDEA what to expect
  • U have to b observed for 6(!!!) hours the first dose because it completely slows down ur heart rate (will slowly go back up (hence the 6 hour observation period and generally go back to absolute normal within a month)
  • Oral (once a day)
  • May improve disability
Decisions...Decisions...

2 comments:

  1. Jeeze talk about a six ah one half a dozen of the other kind of choice:-/ I honestly do not how you will deal with the frustration of having to make such a choice but my prayers are with you that whatever you decide it will work out for the best.

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  2. Are those the only two drug options for you? It does sound like a really tough decision...good luck.

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