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Friday, April 30

Excitement!!!

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So, yesterday I had to go back to the MS Center to get my lab results etc. to see if I qualified to go on the Tysabri.  I also had a dentist...
2 comments:
Thursday, April 29

The Spoon Theory

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I read this today and thought I'd share...it's kinda lengthy but summarizes very well how it can be dealing with a chronic disease. ...
2 comments:
Wednesday, April 28

A Lil Bit of Knowledge

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"They" say that ah lil knowledge is a helluva ting.  I've been on "patientslikeme" more than ever this week.  I'...
Monday, April 26

Day One

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I had a great weekend and today was day 1 of the Ampyra.  I've been on the patientslikeme site and I've been reading other people...
Thursday, April 22

Got Mail!

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so i got the Ampyra yesterday...let's see what this shit can do!  There's been a slight change of plans...I'm going to start ta...
1 comment:
Wednesday, April 21

More Results*sigh*

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Did i ever mention on this site that I hate having this disease?  Well i do...i really do. I went to my neuro yesterday to get the results...
8 comments:
Monday, April 19

Got the Other Call

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Just a quick update today... It's in the mail!  The medication is going to arrive on Wednesday...I will start taking it on Thursday....
6 comments:
Friday, April 16

Research Continues...

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so...i've posted the alcohol question on the website I mentioned before; www.patientslikeme.com.  It's interesting to see the respon...
Wednesday, April 14

HA HA!

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I'm laughing  but it's so NOT funny! Wouldn't u know it...it appears that no-one knows how Ampyra will interact with alcohol. ...
5 comments:
Tuesday, April 13

Oh Shit!

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so I called my mother last nite to give her my good news.  We're talking, just about the medication in general - side effects, how it wi...
2 comments:
Monday, April 12

Good News!

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I was approved for the new drug!!!!  I will be getting a call soon from the pharmacy to set up shipment arrangements:-)  Also my copay is $5...
4 comments:
Friday, April 9

4/9

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HAPPY BIRTHDAY K!!!!!
Tuesday, April 6

Forward Progress

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I called my neuro's office today.  The prescription has been submitted to the pharmacy.  Of course there was an initial problem because ...
3 comments:
Monday, April 5

The Experience

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So, have u ever laid(n?) on a flat, hard surface completely still (head immobilized by a hannibal type mask) in a cold room (thank goodness ...
2 comments:
Sunday, April 4

Today

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Happy Easter to one and all!!!
Friday, April 2

Got the Call

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the cost? $350 out of pocket on the day and then the insurance company is going to cover 80% of the entire cost - ARGH!!!  i hate this ins...
1 comment:
Thursday, April 1

Really????

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Being sick is a helluva ting...My MRIs are scheduled for Sat afternoon.  I'm assuming that the entire process should take about 3 hours...
3 comments:
Tuesday, March 30

March 26th!

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I feel really badly about this...Friday was my grandmother's birthday and i didn't mention it...I spoke with her, but i didn't c...
4 comments:
Monday, March 29

Friggin MS *sigh*

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I am staying up now...LOL!!!  it was too funny last week tho...fallin asleep and/or snoring is NOT cool on a  conference call - esp if u mig...
1 comment:
Thursday, March 25

Muscle Relaxants

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i already mentioned that my neuro prescribed the muscle relaxants for my Spasticity.  Well one of the side effects is drowsiness.  I work fr...
6 comments: