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Friday, April 30

Excitement!!!

So, yesterday I had to go back to the MS Center to get my lab results etc. to see if I qualified to go on the Tysabri.  I also had a dentist's appt earlier in the morning.  I parked my car and spent most of the morning on my feet and then it HIT me...

THERE IS AN IMPROVEMENT!!!!!!!



WOW!!!  Could it really be?  Normally, when i walk to my dentist's office; i struggle (i have to park on the street blah blah blah)...again, normally after going to his office and going somewhere else, I would REALLY be struggling.  I got home after all my appts. and I was still walking as close to normal as i have in months!!!  My feet weren't dragging as i took steps and I was actually walking "fast".  A friend of mine saw me and he could actually tell that there is a remarkable difference...No side effects thus far either!!!!  I know that it's early, so i don't want to get my hopes up too high...but...

anyhoo...so the doctor who saw me today said to me, "you're in perfect health except for this blasted neurological disease eh!".  I prefer to use some other choice words to describe the MS, but hey...So...what does this mean?  Now i have to play the waiting game (as usual).  Someone from the center is going to call me after talking to my insurance company (ugh!) to tell me my copay and set up an appt. for my 1st infusion of Tysabri.

I cannot tell a lie...even though this treatment has this awful potential side effect, I CANNOT WAIT to stop taking the stupid ass daily shot!!! :-)

2 comments:

  1. Ohhh I hope it comes through! I had to do daily shots for 3.5 months when I was pregnant and that was enough!!

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  2. That's great!! I was looking through old journaling/blogging that I had done (a LONG time ago) the other day and came across the day that I realized I felt better... and it gave me goosebumps all over again just reading it!

    I think you are right about our similarities-- I'm in the process of the "wait game" for Tysabri, too... you just happen to be a few steps ahead of me on that one though... I'll let you test the water first, before I jump in. ;-)

    I'm glad you are seeing such a difference without experiencing side-effects elsewhere!

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