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Wednesday, July 7

MS in the News - Again!

so we all know that there is no cure for MS - heck I would bet my last dollar that the researchers are too confused to figure out what could possibly cure; hell they can't even figure out the cause.


There are drugs on the market called disease modifying therapies that slow down the progression of the disease.  I was on the daily shot, now I'm doing the monthly infusion which i am loving (from the frequency aspect); no traveling with the syringes, no walking with them when i spend the nite out, just no worries about taking the bloody thing period!  The Ampyra that i'm taking is different; it's not in that category.  It's a drug that was developed that is specifically for the walking disability.  It does nothing to slow down the progression of the disease; it just helps patients walk faster and feel stronger overall.

Those disease modifying therapies have ALL been shots of some sort.  Monthly, daily, weekly, every other day - all shots.  Well there has been a new drug developed that the FDA is expected to approve in September that, finally, is taken orally!  This is great news for all involved.  Read more...

Will i switch?  Nah...don't think so...the Tysabri will still be the most aggressive and possibly best one on the market, so i'll give it a chance to work...besides which that will be one more  (possibly small white pill) to add to my handy dandy organizer and make me look more like a dealer.

In other news...big match up today - Germany vs Spain.  Germany has been playing like a well oiled machine, I hope they mash up Spain the way they did Argentina.  I'm gunning for a Netherlands/Germany final.

3 comments:

  1. Hi S.S-O,
    We were hoping for Germany v Netherlands too.
    Love,
    Herrad
    ps agree all the drugs are injectables or IV and none can prove they work it is all a gamble seems to me. Some have good reactions and others not

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  2. so much for that battle eh? My team (Brasil) is out and any other team that i like to watch is out so i'm neither here nor there about who wins on Sunday.

    U're right about whether or not the drugs work...it's all a gamble to me too!

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  3. Hi S.S-O,
    Wish there was something for people like me with primary progressive ms but that would require more knowledge like knowing the cause/s.
    Love,
    Herrad
    ps the final is on now very tense and exciting.

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